Practical and methodological aspects of managing a registry to assess the quality of health care for patients with heart failure. A systematic review

Abstract

The aim was to determine the key requirements for a heart failure (HF) registry designed to monitor the implementation of clinical guidelines in everyday practice. A systematic literature review was conducted using the PRISMA methodology to identify multicenter HF registries. The PubMed and eLibrary databases were used. The search depth was 2015-2025. For the final analysis, 46 sources were selected, which presented data from 27 multicenter registries (19 foreign and 8  Russian). An assessment of the registers’ compliance with the main quality criteria was carried out according to guidelines of Martsevich SYu, et al., 2023. Registry designed for routine monitoring of the implementation of clinical guidelines should be: 1) continuously operational; 2) accessible 24/7 in real-time; 3) results are presented in terms of approved quality criteria; 4) achieved results compared to the average result of the reference group; 5) the organizational structure of the registry and algorithms for calculating indicators are universal and publicly available; 6) the organizational structure and calculation algorithms are based on quality measures presented in clinical guidelines but adapted (selected and detailed) for the purposes of maintaining the registry. It should also meet the basic quality criteria for a register as a tool of evidence-­based medicine.