Patient-centered palliative care in pediatric cardiology: a cardiophenomenological approach
https://doi.org/10.15829/1560-4071-2020-4047
Abstract
Despite the success of pediatric cardiology and cardiac surgery in the treatment of severe heart diseases in children, a significant increase in the average life expectancy and quality of life of patients, cardiovascular diseases remain common reasons leading to the need for palliative care. A number of psychological and ethical aspects in pediatric palliative care in cardiology are not sufficiently developed. Cardiac diseases requiring palliative care affect the physiological, psychological and social aspects of patients' lives, and require special attention. It is proposed to use the second-person methods in clinical communication based on the biopsychosocial approach of cardiophenomenology in order to provide a patient-centered environment in palliative care for children with severe heart diseases. Cardiophenomenology can provide non-paternalistic relationships in palliative care for pediatric patients with cardiovascular disease to improve health-related quality of life (HRQoL).
Keywords
congenital heart defects,
quality of life,
patient-centered care,
doctorpatient relationship,
palliative care for children,
cardiophenomenology
Supporting agencies: The study was supported by a grant from the Russian Science Foundation № 20-78-10117 on the topic “Models of interaction between doctors and patients in palliative care centers for children”.
About the Authors
M. D. Miroshnichenko
Pirogov Russian National Research Medical University
Russian Federation
Competing Interests: The authors declare that there is no conflict of interest demanding disclosure in this paper.
Russian Federation
Maxim D. Miroshnichenko - C.Sc. in Philosophy, senior lecturer, UNESCO Network Chair in Bioethics and International Medical Law, International School of Medicine.
Moscow.
Competing Interests: The authors declare that there is no conflict of interest demanding disclosure in this paper.
D. I. Nozdrachev
Pirogov Russian National Research Medical University
Russian Federation
Competing Interests: The authors declare that there is no conflict of interest demanding disclosure in this paper.
Russian Federation
Dmitry I. Nozdrachev - Senior laboratory assistant, UNESCO Network Chair in Bioethics and International Medical Law, International School of Medicine.
Moscow.
Competing Interests: The authors declare that there is no conflict of interest demanding disclosure in this paper.
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For citations:
Miroshnichenko M.D., Nozdrachev D.I. Patient-centered palliative care in pediatric cardiology: a cardiophenomenological approach. Russian Journal of Cardiology. 2020;25(9):4047. https://doi.org/10.15829/1560-4071-2020-4047
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